woops, so my update from my visit with the stoma nurse wasn't quite "tomorrow".... 2 nights overdue isn't too long to wait for an update... my excuse....I'm on "cancer time" ;-) hey having cancer has to have some good points right...
anyway.... so I met with my stoma nurse on Tuesday (a Stoma nurse specialises in all things stoma... a stoma is the name of the "outlet"/ opening that redirects all your waste etc into the bag). She was a wealth of knowledge (and yes I asked her 101 questions), and made things feel kind of "normal" if you can ever call having your small intestine re-plumbed so it sticks out of your stomach.
during my meeting we looked at its placement (within reason you can have a bit of say as to where it will sit), so that I can ride my bike comfortably and that it "fits" ok with my body shape. The big test will be this weekend when I attach a sample bag to my skin and have a test ride of my bike and have a play with my clothes to see if its comfortable.
As I write this, time feels like it is very quickly ticking away... it is now only 5 more sleeps until I have to go into hospital... my first night in hospital will involve prepping for surgery, this will mean I will have to stop eating on Monday night... my last meal for what may be quite some time....It feels rather weird knowing that I have some knowledge about what is going to happen to me.... 4.5 hours in surgery, recovery, getting crammed filled with tubes and drips (everything going both in and out is carefully measured for several days), nill by mouth until my gut starts showing signs of working, and a swimming pool of water being IV'ed into me to make sure I don't dehydrate. For someone who's never had more than a local anaesthetic and a few stitches the whole concept of what is about to happen is more than daunting.
I guess what I take come comfort in is that this time next week it will be all over... I'll be into the next stage of my journey... hopefully fully cancer free.... after all that has happened in the last few months, I seriously can't wait for this to happen.... fuck off cancer, I have shit to do.
oh, before I sign off for the night.... I thought I'd give you an update from the side effects of the chemo... yep, 5 weeks post chemo and I'm still having side affects.... remember the red feet? well they are not sore anymore (yay), but they are weirdly shiny... picture Tom Cruise sliding across the floor with white socks and a shirt on.... except I don't need the socks and I can do this on carpet without trying! new party trick! adding to this my hands are still shiny at times as well... Chemo does weird shit to your body.
So I checked my feet today, and as well as being shiny, I now have large strips of skin coming off... stupid feet! I feel like some creature that sheds its skin.... crap I'm turning into a lizard! hmmm attractive ;-)
Right enough of crusty feet.... I'm off to brew a pot of greentea.
till next time... take care
RAG x
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